This page is currently under construction
We will soon be launching an Online Focus Group for Immunology Patients. This will be in the form of a regular event, hosted digitally. If you think that you are interested in this, sign up for it by emailing us on: Allergy&ImmunologyNurses@LTHTR.nhs.uk
You can read more about this in the poster below.
- Helpful Resources
British Society for Immunology
immunology.org/public-informationImmunodeficiency UK
immunodeficiencyuk.orgInternational Patient Organisation for Primary Immunodeficiency
ipopi.orgImmune Deficiency Foundation (US-based information)
primaryimmune.orgJeffrey Modell Foundation (US-based patient support)
info4pi.orgHAE UK (support for patients with HAE)
haeuk.orgUK PIPS (support for people with primary immune deficiency)
ukpips.org.ukChronic Granulomatous Disease Society
cgdsociety.orgMax Appeal (support for patients with DiGeorge Syndrome)
maxappeal.org.ukUK Primary Immunodeficiency Network
ukpin.org.ukEuropean Society for Immunodeficiencies
esid.orgRareminds Wellbeing Hub
rareminds.org/wellbeing-hub - Referral Guidance and Management Pathways for Primary Care Providers
This section is currently under construction.
- Patient Information Leaflets
This section is currently under construction.
- Improving Quality in Primary Immunodeficiency Services (QPIDS)
Quality in Primary Immunodeficiency Services (QPIDS) is the accreditation programme for primary immunodeficiency services in the UK. Services undergo a programme of quality improvement before receiving a rigorous assessment against the QPIDS standards.
Services which are shown to meet the standards are granted accreditation.
Please contact us if you would like to assist us by getting involved and sharing your experiences!
Contact email: allergy&immunologynurses@lthtr.nhs.uk
Contact phone number: 01772 522130
- Homecare
This section is currently under construction.
Information for patients receiving homecare from Sciensus.
Information for patients receiving homecare from Lloyds Pharmacy Clinical Homecare.
- Patient-led group
Would you consider joining our patient-led online focus group and help us improve the service and meet other Immunology patients?
If so, please contact us and give permission to share your email address with the patient lead, Marian.
- 01772 522130
- allergy&immunologynurses@lthtr.nhs.uk
